Lilly and Davis' Story

Lilly Mae and Davis Anthony were born on Sunday, December 4th. They were born at 25 weeks and 5 days of gestation.

Lilly was born first at 9:56PM. She weighed 1 pound and 14 ounces and was 13.25 inches long. Her head was 24 cm in circumference (slightly smaller than a baseball).

Davis was born at 10:07PM... 11 minutes after his sister (something she'll never let him forget). He weighed 1 pound and 13 ounces. He was 13 inches long and had the same size head as his sister.

Both were taken to the NICU directly after delivery and are expected to be there until their original due date, March 12th (that's exactly 100 days in the NICU!)

Please keep these little ones in your thoughts and prayers and hopefully we will get to bring them home sooner!


Wednesday, February 29, 2012

Day 87 - 2/28/12

Day 87...


Another good day in the NICU. Lilly is still eating all her bottles! Davis is still doing great without his nasal cannulas. Both kids had head ultrasounds today. This is a routine exit exam for the NICU. We should get the results back tomorrow or Thursday. Our time in the NICUis hopefully coming to an end soon!


Weigh in... Davis gained an ounce, making him 6 pounds and 2 ounces. Lilly gained 3 ounces, making her 5 pounds and 8 ounces!

Tuesday, February 28, 2012

Day 86 - 2/27/12

Day 86...

We planned on taking some photos while they were awake and active, but we wanted to feed them first. They both passed out instantly after dinner... so, more pictures of the kids asleep.


Lilly gulped down her full bottle in 8 minutes, then went straight to bed!

Check out Davis without his nasal cannulas, he's such a big boy now!

Today was another good day for the kids! Davis has been off his nasal cannulas for over a day and is doing well! hopefully we are done with them for good. Lilly has been doing great with her feedings. She ate all her meals this afternoon and night from a bottle. Hopefully she is ready for the feeding tube to be pulled!

Weigh in time... Davis broke the 6 pound milestone!!! He now weighs 6 pounds and 1 ounce! Lilly gained another ounce and is now 5 pounds and 5 ounces! Woohoo!

Sunday, February 26, 2012

Day 85 - 2/26/12

Day 85...

Both kids are doing well! We gave Davis a bath today for our first time (not his first time...). Not sure he really liked it too much. They are both are doing well with their feedings. Davis is still fighting his reflux issues, but it seems to be getting slightly better. Lilly is taking most of her feedings from a bottle. She stopped taking the diuretics today. They will check her over the next few days to see if they think she needs to go back on them again.

Today was the full measurement day. They both are still the same height and have the same size heads as last week. Davis gained an ounce from yesterday, so he is 5 pounds and 15 ounces! I think tomorrow he is going to hit the 6 pound mark! Lilly gained an ounce and is now at 5 pounds and 4 ounces!

Day 84 - 2/25/12

Day 84...

Still no big changes. Lilly is still taking the Lasix (a diuretic) and she seems to be responding to them well. She is much more alert and is gulping down her bottles! She still takes a few feedings each day through her feeding tube, but is slowly taking more and more bottles.

Weigh in... Davis gained 2 ounces, making him 5 pounds and 14 ounces, woohoo! Lilly is still at 5 pounds and 3 ounces.

Day 83 - 2/24/12

Day 83...

No big changes today...

Davis is still at 5 pounds and 12 ounces. Lilly lost another ounce, making her 5 pounds and 3 ounces.

Day 82 - 2/23/12

Day 82...

They started Lilly back on diuretics today... they think she is retaining some water. They think the diuretics will help her get rid of the water and help give her more energy to eat from her bottles more often.

Davis didn't gain any weight, so he's still at 5 pounds and 12 ounces. Lilly dropped 3 ounces today due to the diuretics. She is now 5 pounds and 4 ounces.

Thursday, February 23, 2012

Day 81 - 2/22/12

Day 81...

Another day of eating and growing. The kids had their eye exam check up today. Their eyes are still developing well. Other than that, not much happening.

Today was a big weight gain day for both Lilly and Davis! Lilly gained 2 ounces, bringing her to 5 pounds and 7 ounces. Davis gained 3 ounces, making him 5 pounds and 12 ounces!

Day 80 - 2/21/12

Day 80...

Another good day in the NICU. The kids are doing well... just eating and growing.

Weigh in... Davis's weight stayed the same at 5 pounds and 9 ounces. Lilly gained another ounce, making her 5 pounds and 5 ounces.

Tuesday, February 21, 2012

Day 79 - 2/20/12

Day 79...

Davis hanging out in his crib.

Mom holding Lilly and Davis after dinner... they are both passed out!


Lilly relaxing.


Another good day today! Both kids are eating well and growing big and strong. No big changes today. We brought in our own bottles to make sure the kids like them when we eventually get to bring them home. They both love the new bottles! Davis was chugging his food today! His average feedings were close to 35 ml per meal yesterday... today he pounded his bottles eating 52 ml, 60 ml and 50 ml at his last 3 feedings. Lilly also ate from her bottle 3 times today. We're gradually increasing her bottle feeds so that we don't wear her down again.

Davis gained 2 ounces, making him 5 pounds and 9 ounces! Lilly gained an ounce, making her 5 pounds and 4 ounces!

Sunday, February 19, 2012

Day 78 - 2/19/12

Day 78...

Today was another pretty good day for the kids. They are still handling everything fairly well... reflux is still an ongoing issue for Davis.

Today was measurement day, so here's the run down:

Davis is now just under 18 inches long. His melon is 34.5 cm in circumference. His weight didn't change, so still at 5 pounds and 7 ounces.

Lilly is just over 17 inches long. Her head is 32 cm. She gained an ounce, making her 5 pounds and 3 ounces (Look out Davis, she's catching up!!!).

Day 77 - 2/18/12

Day 77...

Everything is going well with the kiddos. No big changes.

Weigh in... Davis gained 2 ounces and is at 5 pounds and 7 ounces. Lilly also gained 2 ounces, making her 5 pounds and 2 ounces.

Day 76 - 2/17/12

Day 76...

Woohoo, Lilly hit 5 pounds today! Lilly is 5 pounds and 0.4 ounces! Davis is still at 5 pounds and 5 ounces.

Friday, February 17, 2012

Day 75 - 2/16/12

Day 75...

Three steps forward, then two steps back... Lilly had her feeding tube reinserted today. She was wearing herself out trying to eat from a bottle for every feeding. By 3:00AM, she wouldn't even wake up to eat. So, I guess they'll take it slower and alternate bottle feedings and feeding tube.

Davis is doing well. He is still taking all his feedings from his bottle. He is also still struggling with his reflux. There's nothing they can do for the reflux... hopefully it gets better soon!

Weigh in... Davis lost an ounce, making him 5 pounds and 5 ounces. Lilly gained an ounce, making her 4 pounds and 15 ounces. Maybe tomorrow will be the day she passes 5 pounds!

Thursday, February 16, 2012

Day 74 - 2/15/12

Day 74...

Today was a pretty good day for the kids. Davis didn't last long laying flat... the reflux was too much, so they put him back on an incline. Lilly is doing pretty good, but she is very tired. Making her drink from a bottle for every feeding is making her exhausted. We tried to bottle feed her at 9:00PM, but she wouldn't wake up. She managed to take a couple sips in her sleep, but no where near the amount she is supposed to be eating. They may have to put her feeding tube back in tomorrow if she continues to not wake up for feedings.


Weigh in... Davis gained 2 ounces, so he is now 5 pounds and 6 ounces! Lilly stayed at 4 pounds and 14 ounces! I think tomorrow will be her day to pass 5 pounds... assuming she wakes up to eat.

Tuesday, February 14, 2012

Day 73 - 2/14/12

Day 73 ... Happy Valentine's Day!!!


Lilly strutting in her tutu!

Davis adjusting his nasal cannulas before his big photo session with his sister.


Davis getting mad because he wants to be on the left side... Lilly just letting her brother complain (and taking a cheap shot and poking his ear when he's not looking).



Both kids posing for the camera! They say, "Happy Valentine's Day!"


Davis said "enough is enough, where's my bottle!"

Our little angel needs her beauty rest.


Davis finally got his bottle, then went straight into a food coma... he's gonna be just like his dad.

Today was big day for the kids! They pulled Lilly and Davis's feeding tubes! That means they will get all their meals from bottles for now on (at least that's the plan...)! They also lowered both of their beds. They were sleeping on inclines to help with their reflux, but they want them to get used to being flat on their backs for when they get to go home.

They reduced Davis's airflow on his nasal cannulas and they're allowing Lilly to be without hers when she's not eating. Hopefully it won't be long before they are both off and breathing without any support!

Finally, both kids got their 3rd vaccination today. Both kids also has their hearing tests today. Their ears are working fine!

It won't be long now before we get to bring them home, maybe within the next couple of weeks!!!

Weigh in time... Lilly gained 2 ounces and is now at 4 pounds and 14 ounces!!! Davis lost an ounce, making him 5 pounds and 4 ounces... he's waiting for his little sis to catch up, what a gentleman!

Day 72 - 2/13/12

Day 72...

Ok, my blogging break is over... I'll go back to updating everyday. We'll also add more photos! Lilly and Davis have special Valentine's day outfits, we'll make sure we post their pictures and share with everyone tomorrow.

Both kids are doing well. Both kids got 2 of their vaccinations last Sunday. They are both going to get their 3rd vaccination tomorrow. Other than that, no big changes... still just cruising along.

Today was a huge milestone for Davis's weigh in! Davis is now 5 pounds and 5 ounces... same as Dad's birth weight! Mom was over 10 pounds when she was born, so we have a ways to go before we hit that milestone. Lilly is now 4 pounds and 12 ounces... not long before both are over the 5 pound mark!!!

Sunday, February 12, 2012

Day 71 - 2/12/12

Day 71...

The kids had a pretty good weekend. They are both taking 3-4 bottles a day, with the rest of their feedings still going through their feeding tubes. Davis is still working through reflux issues, so he has episodes after some of his meals. Not really any big changes... just growing and getting stronger.

Weights... Davis broke the 5 pound mark on Saturday! Today he weighs 5 pounds and 3 ounces! Lilly is up to 4 pounds and 10 ounces!

Wednesday, February 8, 2012

Day 66 - 2/7/12

Day 66...

Today was a great day!!!

Lilly had a follow up echo cardiogram yesterday to check out her PDA and the slight distress on her heart. The results cam back today and the PDA has "resolved itself"! Woohoo, no surgery for her!!! They also said her heart looked normal, so the distress has gone away. They also took Lilly off a bunch of meds... the Lasix (the diuretic), a potassium supplement they were giving her because she was on Lasix and the caffeine she's been on since forever. Finally, they're allowed to start weening her off the nasal cannulas! We can't wait, that'll mean no more breathing tubes!

Davis earned himself a kidney sonogram because of the UTI he had a couple weeks ago. Something about a UTI could indicate a potential bladder/kidney issue... The results from the sonogram came back yesterday and everything looks good! They are also weening Davis off his nasal cannulas, but at a slower rate. He's having some reflux issues when he eats, so they don't want to take away his extra air too fast.

Both kids are handling their bottle feedings great! They still get fed through their feeding tubes on a regular basis, but they are slowly taking more and more bottles!

Weigh in... Davis weighs 4 pounds and 12 ounces! Lilly weighs 4 pounds and 2 ounces! They both were just over 16 inches long on Sunday when there were last measured!

Monday, February 6, 2012

Day 64 - 2/5/12

Day 64...


Sorry, it's been a couple of days since we have updated the blog. Everything is going well... we've just been a little busy.


Davis and Lilly are both doing well! Both babies are doing great with their bottle feedings and they are slowly increasing the number of times they eat from a bottle each day. They cut Lilly off from her caffeine on Sunday and she seems to be handling that fine.


Both babies have gained a lot of weight since the last blog! Lilly hit the 4 pound mark last nigt, coming in a 4 pounds and 0 ounces. Davis hit 4 pounds and 8 ounces!

Thursday, February 2, 2012

Day 60 - 2/1/12

Day 60...

Davis and Lilly were great with their bottles!!! I got to feed Davis and Lindsey fed Lilly. We are allowed to bottle feed for 20 minutes, then the leftovers get pushed through their feeding tubes. Davis ate over half his bottle in 12 minutes... then he passed out. I guess eating from a bottle is hard work. Davis was great with pacing himself during his feeding (he remembered to breathe between bites...). Lilly ate just under half her food over 10 minutes. She also did great with pacing herself.

Davis and Lilly got to try their second bottle at their 3:00 AM feeding. They bottle took their entire bottles within the allotted time!!!

Lilly also had her eye check up yesterday. The doctors were very impressed with the amount of development with her eyes over the week. She is now rated a 2 out of 3 in eye maturity (same as Davis)! She still shows no sign of eye disease.

Weigh in... Davis gained an ounce and weighs 4 pounds and 3 ounces. Lilly gained 2 ounces and now weighs 3 pounds and 10 ounces!





1st Bottle...whoohoo!!


Burp time

Eating is hard work



My turn now.....Lilly's first bottle


Pouty lips


Well that was fun....I wonder what yummy food they'll give us tomorrow?