Day 54 - 1/26/12

Day 54...

Davis was struggling a bit today. He had several episodes throughout the night and in the morning. The nurses are not sure what is causing this and decided to run him through all the infection tests. Initial results are indicating that he does not have an infection, but we will need to wait to see if anything grows in the blood or urine cultures before we know for sure. His CRP test (a test that looks for a certain protein that increases if there is any inflammation, which could be caused by an infection) showed levels that were borderline concerning (he came back with a 19... a value of 20 or higher causes concern). So, he'll get another CRP test tomorrow morning.

Davis has gone through a ton of changes in the last few days and that could be the cause of the increase in his episodes. Let's see... they cut off his caffeine (if he's anything like me, that alone would cause full body shutdown), dilated his eyes for an exam (and he never got the trendy sunglasses they usually give out after eye exams...), switched him from nasal cannulas to breathing in a bubble for a day to give his nose a break, ran a catheter in him (not just once, but twice!) to get urine for a culture, pricked his foot to get blood for multiple tests and to top it off, his mom is making him listen to a Jewel lullaby CD on repeat... I would be having episodes if I had to endure all of that too!

Mommy got to hold both kids today (want to make sure I'm fully recovered from my cold before I hold the kids...). They both did well and seemed to have a great time! Both kids are starting to smile on occasion, so our visits with the kids include lots of random noises, movements and gestures to see if we can get them to crack another smile. A casual observer (correction... any observer) would probably think we are very strange people.

Weigh in time... today was Lilly's day for big gain. She gained 2 ounces, making her 3 pounds and 4 ounces! Davis lost an ounce, so he now weighs 3 pounds and 10 ounces.